Welcome to the digital KMSK knowledge platform Rare Diseases, which is aimed at families of children and adolescents with rare diseases and professionals.
On this page, affected families and professionals can find relevant information on contact points, professionals and support services - clearly arranged and independent of the child's medical diagnosis. The knowledge platform serves as a central point of contact to simplify the search for information. It also provides concrete assistance on who to contact in the social and health care system with which concerns. Our primary goal is to relieve affected families with this information service so that they can master all the organizational, administrative, psychological and financial challenges with less effort. For professionals, the knowledge platform is intended to be a reference work to help them in their work with affected families.
If you are looking for something specific, enter the term that is important to you in the search bar or browse through the topics in the tile view.
You can make suggestions for adaptations and additions directly in the Update form with a corresponding note.
Please note that this information and contact points have been compiled to the best of our knowledge and belief.