Children with rare diseases often rely on special education and support services.
This means that parents of a child with special needs often face specific challenges. For example, finding a place in a daycare center or in a day family can be difficult because there are often no places available, the fees are higher, or the specific expertise of the caregivers is lacking. For some of you, the question also arises as to whether integrated or separate special education is indicated. Children with special needs have the right to adequate, individual support.
Note 1: The amount of care required is very high, especially during the preschool years
As long as your child the child is not yet in kindergarten or school, the childcare burden for you and many parents report that they reach their limits especially in the first years of their child's especially in the first years of their child's life. Especially during this time in particular, it is important to have access to a wide range of support services. There is no one ideal solution. When the child starts school, the the effort is usually reduced. Your child is then regularly out of the house for a few hours and Out of the house for a few hours and therapies are offered, for example, by Remedial schools, so that your "driving service" is no longer necessary.
Note 2: Every child has a right to education and is required to attend school
In In principle, all children in Switzerland from the age of 4 have a right to education and school attendance is compulsory School attendance is compulsory. According to the Federal Constitution (Art. 41, para. 1f) all children and adolescents should "be able to educate themselves according to their abilities" and further education". Special education for children with special Needs is prescribed in the Federal Constitution. In most cases, special pedagogic Early education, pediatricians or the school psychological service will discuss with you which form of education is suitable for your child. If a Special education needs are determined, you will be assigned to a suitable school in your region School in your region.
Note 3: Early remedial education provides support for daycare, kindergarten, and school enrollment issues
The early remedial education can help you with questions about daycare, kindergarten and school enrollment support. For example, it can help you with the formal steps necessary for integration into the regular kindergarten.
Early remedial education is aimed at children from birth to kindergarten age or entry into primary school who are affected by a developmental impairment, deviation, delay, risk or disability.
Note 4: The cantons are responsible for the school system
The cantons with their municipalities are responsible for the regulation and enforcement of the compulsory education (primary and lower secondary level), so there are cantonal differences cantonal differences. Do not let and find out what is on offer in your region or canton of residence and who is in your region or canton of residence and who can give you advice.
Information on special schools can be found on the cantonal websites cantonal websites. Search the Internet for "special schools and canton XY (your canton of residence)" Canton of residence)".
Note 5: There is a Disability Equality Act
In principle, the cantons are required To integrate children with disabilities. However, it may well make sense for your child to attend a special school. It is important that before decision, a well-founded consideration of interests and needs should take place. The Disability Equality Act can be used to enforce integration into the regular school. Here, the prohibition of discrimination, which is anchored in the Federal Constitution, is an important point.
Note 6: Family supplementary childcare
In Switzerland, family-supplementary childcare (for this, also look at Relief, care and support is widespread and is also specifically promoted by the federal government. Almost two thirds of children under 13 years of age are cared for in addition to the family, and 71% of under 3-year-olds, the figure is 71%. One third of the children are cared for by grandparents, Daycare centers or through supplementary school care. The institutional The institutional offer is generally well developed. Make use of supplementary family services and plan for them to support your everyday life.
Contact the early education services, they can support you in finding a suitable place.
Important questions - Kita
Which daycare centers offer places for children with rare diseases?
Here you will find a selection
of offers. If there is no offer that corresponds to your needs (e.g. place of residence)
you can ask the responsible persons of a daycare center in your area for offers
about offers for children with special needs.
kibesuisse - Association for Childcare Switzerland
kibesuisse is working throughout Switzerland for better integration of of children with special needs in supplementary family and school childcare Childcare.
Integrated on the Website is a map with a search field, so that you can find all childcare offers of the kibesuisse members regarding daycare centers and day families.
Important questions - Kindergarten
Which kindergartens have specific services for children with special needs?
When a child with special needs reaches kindergarten age, there is the option of integration into a regular kindergarten. Alternatively, affected children can attend a curative education kindergarten. These are often run by curative special education schools. Which format is generally suitable for your child can be discussed, for example, with specialists in early counseling, school integration (bsi), speech therapy, etc.
Important questions - School
What is integrative special education?
Due to their disability, children with special needs have the right to adequate, individual support. In principle, this can be offered in a special school or in a regular school. Integrative special education requires the recommendation of the school psychology service and the agreement of the parents, teachers and school authorities.
Integrative special education is financed by the child's municipality of residence. In simple terms, the child receives individual support in the regular school.
What is a (separative) special school or a remedial school?
A special school is part of the compulsory education level. It only accepts children and adolescents who (on the basis of the standardized assessment procedure for determining individual needs or a comparable procedure) are entitled to enhanced measures. It is subject to a cantonal approval procedure and can also be combined with inpatient accommodation or day care.
Special schools specialize in certain types of disabilities as well as learning and behavioral difficulties. Children with mental or multiple disabilities usually attend a special education school. Children with physical, visual, hearing and speech disabilities, as well as autism spectrum disorder, severe learning disabilities and behavioral problems, have access to specific special schools.
Where can I find information about integrative or separative forms of education?
Foundation Swiss Center for Curative and Special Education
Integration and School is a website that provides relevant information about the integration of of children with disabilities in early education, school and vocational training Vocational training.
Switzerland offers help for integration into mainstream schools through various
Here, individual counseling and accompaniment is offered to parents who are Have problems with the school integration of their child. The platform elternsofa.ch also offers the opportunity to exchange ideas with mothers and fathers of a child with an intellectual disability - also on the subject of integration at school. In addition, there is information material on the integration of children in the In the early years, in school and in vocational training with details of contact points.
Procap is committed to ensuring that as many people with disabilities as possible can attend mainstream schools and advises on school issues. However, "only" possibilities are pointed out. Legal representation is not assumed.
Who can concerned parents turn to if integration does not work out?
Depending on the canton, the School system is organized differently. The first step should be to talk to the teachers involved After that, the school management, the school psychological service or the responsible authorities can be consulted. The next Authority is the education directorate, which has a legal service that can be consulted if necessary can be consulted if necessary. Legal advice services can also be consulted (see legal advice under Insurance benefits, application, enforcement). Reference can be made to the Disability Equality Act BehiG.
Inclusion Handicap can support support when affected children are not integrated into a regular school is denied. The Equality Law Department frequently deals with School cases and weighs up the chances. If this is in favor of the affected families and if free resources are available, the association the association takes over such a case.
Interesting technical articles from the KMSK knowledge books "Rare Diseases
1. KMSK Knowledge Book "Rare Diseases - Insights into the Lives of Affected Families"
Nicole Klee Zihlmann, early remedial education in the Canton of Thurgau: "A start under special conditions" Conditions"
Marion Heidelberger, teacher for integrative promotion and Vice-President of the Swiss Teachers' Association (LCH): "Even seriously ill children have a right to school integration Right to integration at school"
2. KMSK Knowledge Book "Rare Diseases - The Way - Genetics , Everyday Life, Family and Life Planning"
Kathrin Suter, Head of School and Boarding, Curative Education Center Hagendorn: "At the curative education school, the child is the child is supported holistically"
3. KMSK Knowledge Book "Rare Diseases - Therapies for Children and Support for the Family"
Daniela de Filippo, Team Leader Kita "Peter Pan", Wittenbach: "Daycare center for children with special Special needs"
Pia Vogler, Rector, Curative Education Center Hohenrain: "The Curative Education Center Hohenrain includes school and residential group"
5. Knowledge Book "Rare Diseases - Digital Knowledge Platform for Parents and Professionals"
Individual path in daycare, kindergarten and school
Prof. Dr. Melanie Willke, International School of Special Education (HFH) Zurich:How can educational support for children with rare diseases succeed?
Sarag Wabnitz, Berufsverband Heilpädagogische Früherziehung BVF: Support on the way to the right daycare center, kindergarten or school