We hope that you found the information you were looking for and that we were able to help you with our KMSK knowledge platform.
As parents and families and families of children and adolescents with a rare disease, you are the real are the true experts on your child's disease and therefore have a wealth of knowledge about a wealth of knowledge about support services and services for children we would like to ask you to send us your suggestions for the update of the Platform using the form below.
- Do you know of additional contact points and organizations that we should list?
- Would you like to share another valuable tip that you feel is missing from this page?
- Is an information or link we list out of date?
We also ask Institutions, specialists, contact points, etc. to request updates if information is no longer if information is no longer up to date or is not yet listed at all not yet listed.
We are very pleased parents and professionals to contribute to the dynamic development of the platform Further development of the platform. We will gladly review each Review each update request to decide if it meets our criteria Criteria.
Thank you for your Support!